A recent viral tweet on X (formerly known as Twitter) by a Nigerian mother shared a heartbreaking story. She had missed her antenatal check-ups because she was hustling for money, and only went for a ...

With the growing success of organ transplantation in the early 1980s, organ donation from anencephalic infants became a topic for practical and ethical consideration. Criteria for brain death guided ...

FORSYTH, Ill (WAND) May is Anencephaly Awareness Month. Anencephaly is a rare disease in which a baby does not fully develop their skull before birth. Virtually all babies die before birth or within ...

Joe and Crystal Ossello braced themselves for perhaps only five minutes to meet their daughter, Harlow. They got 15½ hours together. Harlow had a neural tube defect called anencephaly, which means ...

Last night I made the trek down to beautiful, fragrant Sunnyside for the first of two state Department of Health listening sessions on anencephaly, and I have to say I was pleasantly surprised by the ...

SUNNYSIDE, Wash. - About 25 community members turned out Tuesday night for a question-and-answer forum about anencephaly, a fatal birth defect that has been occurring in high numbers in a three-county ...

When Stephanie Schoonover and her husband first got the gutwrenching news at their 12-week ultrasound that their baby daughter Grace would be born with anencephaly, a deadly birth defect when babies ...

PROVIDENCE, R.I. (WJAR) — Baby Angela, who touched the world with her “miraculous journey with anencephaly,” has died. “It is with great sadness I share that Angela went to heaven Saturday, December ...