Alice Wong, a disability rights activist with spinal muscular atrophy who died in November, left behind a legacy of advocacy ...

Changes in motor units closely reflect disease severity in people with spinal muscular atrophy (SMA), suggesting potential ...

Columnist Connie Chandler is often asked how her parents raised two children with SMA, so she decided to find out for herself ...

Evrysdi can stabilize motor function, improve swallowing ability, ease fatigue, and improve life quality for adults with SMA, ...

SMA children who can't walk have weaker upper leg bones than kids with cerebral palsy who are nonambulatory, a comparative ...

Let's have more conversations about intersecting identities and diverse representation in films and musicals, says columnist.

Columnist Connie Chandler may have limited control over her physical abilities, but she can always strengthen her faith and ...

Columnist Brianna Albers is not good at waiting. One might say she's terrible at it. Living with SMA, though, seems to bring a lot of it.

Discover the most-read SMA stories of 2025, featuring updates on the gene therapy Zolgensma, next-generation treatments, and diet research.

The magic of theater is that it’s live. Despite having a script, cues, rehearsals, and anything else the cast and crew can use to achieve consistency, the live nature of theater means the production ...

Itvisma approved for SMA patients ages 2+; gene therapy now available for all ages. Itvisma is a one-time intrathecal therapy designed to improve motor function in SMA. Potential side effects include ...

Leuprorelin acetate, a prostate cancer medicine, may slow progression of spinal and bulbar muscular atrophy. SBMA is a genetic disorder causing progressive muscle weakness, usually first noticed in ...