Make Neurofibromatosis Visible: Michelle's Story
1:21
Make Neurofibromatosis Visible: Michelle's Story
4.5K viewsMar 27, 2023
TikTokchildrenstumor
Big ideas. Bold science. Real impact. 🌟 Explore the 2025 NF Conference Highlights Report and see how innovative discoveries are driving clinical trials, accelerating treatments, and shaping the future of NF research. https://go.ctf.org/conferencehighlights2025 #EndNF | Children's Tumor Foundation
0:04
Big ideas. Bold science. Real impact. 🌟 Explore the 2025 NF Conf…
242 views8 months ago
FacebookChildren's Tumor Foundation
Meet others with NF and learn about recent research advancements. The NF Summit is your opportunity to immerse yourself in the NF community. | Children's Tumor Foundation
0:31
Meet others with NF and learn about recent research advancements. Th…
461 viewsFeb 16, 2023
FacebookChildren's Tumor Foundation
🎥 Step inside the leading global event for NF research and care! The NF Conference is where scientists, clinicians, and experts from around the world come together to push boundaries, share breakthroughs, and collaborate on new ways to improve the lives of people with NF1 and all forms of schwannomatosis, including NF2-related schwannomatosis (NF2-SWN). Hosted by the Children’s Tumor Foundation, this annual event sparks innovation across basic, translational, and clinical research — and its imp
1:01
🎥 Step inside the leading global event for NF research and care! The NF …
1.3K views9 months ago
FacebookChildren's Tumor Foundation
At the Children’s Tumor Foundation, everything we do drives treatments for people living with NF1, NF2-SWN, and SWN. The NF field is entering a powerful new moment—one where we have the potential to truly end NF. These CTF milestones show that bold ideas can become real solutions for every form of NF. The Future Starts Here. 🌟 A Second FDA-Approved NF1 Drug Gomekli (mirdametinib) won FDA approval — only the second drug ever approved for NF1 and the first for adults. The first FDA approved NF1 d
0:43
At the Children’s Tumor Foundation, everything we do drives treatment…
1.3K views5 months ago
FacebookChildren's Tumor Foundation
Have you ever wondered: What is NF1? It's short for neurofibromatosis type 1, but what IS it? You’re not alone — and we’re here to help. In the Big Questions about NF series, Kate Kelts, RN, BSN, breaks down key questions and concerns that NF patients and families ask most often. Missed the previous episodes? Check out our YouTube channel! 🎥 www.youtube.com/childrenstumor | Children's Tumor Foundation
2:18
Have you ever wondered: What is NF1? It's short for neurofibromato…
7.5K views5 months ago
FacebookChildren's Tumor Foundation
For 45 years, the Children's Tumor Foundation has steered the trajectory of NF research and clinical care toward astounding advancement, including the first FDA-approved NF treatment, with more on the horizon. This progress is a testament to CTF’s early trailblazers’ enduring spirit and perseverance. We were proud to celebrate this progress at this year’s Gala and honored at the generosity of our supporters who contributed over $2.7 million to advance NF research. Please enjoy this look back at
3:31
For 45 years, the Children's Tumor Foundation has steered the traject…
869 viewsNov 16, 2023
FacebookChildren's Tumor Foundation
0:06
Dive into our latest newsletter! In this issue, you will find: ⭐️ “Mak…
324 viewsMay 6, 2024
FacebookChildren's Tumor Foundation
56:09
NF Summit 2022: Genetics 101 and VCEP/Genetic Modifiers and Cuta…
347 viewsMar 6, 2023
YouTubeChildrens Tumor Foundation
1:56
Make NF Visible: Laura and Ken
2.1K viewsMar 25, 2021
YouTubeChildrens Tumor Foundation
1:48
⏱️🌟 THE TIME IS NOW: A major turning point for NF research occu…
4.1K viewsNov 28, 2023
FacebookChildren's Tumor Foundation
0:11
New progress in NF2 gene therapy ✨ CTF research published promis…
2K views5 months ago
FacebookChildren's Tumor Foundation
0:16
At the Children’s Tumor Foundation we BELIEVE in ending NF. | Childr…
9.5K viewsDec 9, 2022
FacebookChildren's Tumor Foundation
0:17
El Registro NF es un sitio web seguro que permite a las persona…
135.8K viewsJul 9, 2024
FacebookChildren's Tumor Foundation
5:26
Patient Story: Aidan | Pediatric Neurofibromatosis
4.4K viewsMay 23, 2012
YouTubeMontefiore Health System
1:04:19
NF Summit 2024: NF1 Through the Lifespan
608 viewsApr 19, 2024
YouTubeChildrens Tumor Foundation
0:40
We're thrilled to announce that the Children’s Tumor Foundation's sh…
1.3K viewsMar 11, 2024
FacebookChildren's Tumor Foundation
2:01
For over 70 years, Marcia has faced the challenges of NF1. As a child, …
5.4K viewsDec 16, 2024
FacebookChildren's Tumor Foundation
3:59
Brianna Worden, Children's Tumor Foundation 2020 National Ambass…
2.9K viewsNov 21, 2019
YouTubeChildrens Tumor Foundation
2:23
Make NF Visible with the Children's Tumor Foundation
4.6K viewsMar 16, 2021
YouTubeChildrens Tumor Foundation
3:30
A heartfelt THANK YOU to each and every one of you who made our G…
1.2K viewsNov 14, 2023
FacebookChildren's Tumor Foundation
0:55
These Facts about NF are MUST KNOW! #endnf #neurofibromatosi…
2.4K viewsApr 30, 2025
YouTubeChildrens Tumor Foundation
1:33
Children's Hospital of Richmond establishes biobank to tackle rare …
Apr 17, 2025
MSNWTVR Richmond,VA
0:20
With unwavering commitment, we are honored to share this letter o…
3.2K viewsFeb 28, 2025
FacebookChildren's Tumor Foundation
1:27
Visionary leadership. Global impact. Heartfelt dedication. Dr. Richard S…
1.5K views7 months ago
FacebookChildren's Tumor Foundation
0:58
The Children’s Tumor Foundation is proud to announce that Alexandr…
2.5K views6 months ago
FacebookChildren's Tumor Foundation
0:42
Driving treatments for people living with NF1, NF2-related schwannom…
2.6K views5 months ago
FacebookChildren's Tumor Foundation
57:46
NF Knowledge Series: New FDA Approved Treatment for NF1
1.8K viewsFeb 24, 2025
YouTubeChildrens Tumor Foundation
0:49
What is NF? #nf #endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #n…
1.5K viewsMay 1, 2025
YouTubeChildrens Tumor Foundation
4:22
Connecting the Unconnected to End NF
756 viewsFeb 16, 2021
YouTubeChildrens Tumor Foundation
See more videos
Static thumbnail place holder