Take meaningful action this year to raise awareness for rare diseases: Request that your city or state officially recognize February 28 as #RareDiseaseDay. NORD's Proclamation Toolkits have everything you need to get started: https://bit.ly/49BBMmQ | National Organization for Rare Disorders, Inc. (NORD)

Every patient’s story and experience is a unique, invaluable part of a disease’s natural history. Log on to your profile in the Global PNH Patient Registry at pnh.iamrare.org today and share your experience with Paroxysmal Nocturnal Hemoglobinuria. We want to hear from you! https://pnh.iamrare.org/ | National Organization for Rare Disorders, Inc. (NORD)