Sam Berns: My philosophy for a happy life | The Progeria Research Foundation
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Sam Berns: My philosophy for a happy life | The Progeria Research Foundation
Sam was the inspiration behind the creation of The Progeria Research Foundation(PRF). He continues to inspire us in our mission to cure #Progeria and the world with his words of wisdom. Share the love to keep Sam’s positive vibes flowing around the world. 💙 Watch it here: https://lnkd.in/etVpCtCU Donate in honor of Sam: https://bit.ly ...
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Progeria Documentary
PRF | Join Dave Matthews and Sam -- help them cure Progeria!
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PRF | Join Dave Matthews and Sam -- help them cure Progeria!
YouTubeThe Progeria Research
24.1K viewsOct 16, 2013
Remembering The Inspiring Sam Berns
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Remembering The Inspiring Sam Berns
YouTubeKatie Couric
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The Triumphant Story of Sam Berns, Progeria and Math
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The Triumphant Story of Sam Berns, Progeria and Math
YouTubeABC News
140K viewsOct 22, 2013
Top videos
Register TODAY for PRF's 2021 Race for Research in-person on our Peabody, MA course -- or VIRTUALLY, wherever you live! The in-person race will feature our signature 5K run and 2-mile fun walk – it’s a great course for the serious athlete, casual runner, families, and teams. Please join us on Saturday, September 18. Register at: www.PRFRoadRace.org #progeria #raceforresearch #runforcharity | Progeria Research Foundation
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Register TODAY for PRF's 2021 Race for Research in-person on our Peabody, MA course -- or VIRTUALLY, wherever you live! The in-person race will feature our signature 5K run and 2-mile fun walk – it’s a great course for the serious athlete, casual runner, families, and teams. Please join us on Saturday, September 18. Register at: www.PRFRoadRace.org #progeria #raceforresearch #runforcharity | Progeria Research Foundation
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2.2K viewsAug 30, 2021
Meet the Kids | The Progeria Research Foundation
Meet the Kids | The Progeria Research Foundation
progeriaresearch.org
100 viewsJan 1, 2009
#progeriaresearchfoundation #progeria | Edita Tamorada
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#progeriaresearchfoundation #progeria | Edita Tamorada
FacebookEdita Tamorada
71.8K viewsFeb 11, 2025
Progeria Treatment
Meet the family working with scientists to fight rare diseases with CRISPR therapy
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Meet the family working with scientists to fight rare diseases with CRISPR therapy
TODAY.comMeghan Holohan
Jun 18, 2020
Ancient True Story - Doctors Said He’d Die at 13—He Lived to 28 and Changed Science Forever
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Ancient True Story - Doctors Said He’d Die at 13—He Lived to 28 and Changed Science Forever
YouTubeSpeen Gamerz
1.2K views1 month ago
NPR asked him the most important thing about him. His answer wasn't the disease.
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NPR asked him the most important thing about him. His answer wasn't the disease.
YouTubeFriendship Circle International
1 week ago
Register TODAY for PRF's 2021 Race for Research in-person on our Peabody, MA course -- or VIRTUALLY, wherever you live! The in-person race will feature our signature 5K run and 2-mile fun walk – it’s a great course for the serious athlete, casual runner, families, and teams. Please join us on Saturday, September 18. Register at: www.PRFRoadRace.org #progeria #raceforresearch #runforcharity | Progeria Research Foundation
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Register TODAY for PRF's 2021 Race for Research in-person on our Peabody, MA course -- or VIRTUALLY, wherever you live! The in-person race will feature our signature 5K run and 2-mile fun walk – it’s a great course for the serious athlete, casual runner, families, and teams. Please join us on Saturday, September 18. Register at: www.PRFRoadRace.org #progeria #raceforresearch #runforcharity | Progeria Research Foundation
2.2K viewsAug 30, 2021
FacebookProgeria Research Foundation
Meet the Kids | The Progeria Research Foundation
Meet the Kids | The Progeria Research Foundation
100 viewsJan 1, 2009
progeriaresearch.org
#progeriaresearchfoundation #progeria | Edita Tamorada
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#progeriaresearchfoundation #progeria | Edita Tamorada
71.8K viewsFeb 11, 2025
FacebookEdita Tamorada
Help the Progeria Research Foundation wish a Happy 12th Birthday to Livia from Brazil 🇧🇷! 🎁Feliz aniversário Livia loves playing with her pets during her free time. She has many animals including dogs 🐕, cats 🐈, rabbits 🐇, turtles 🐢, fish 🐠, chickens 🐓, and peacocks 🦚. She also loves singing and dancing at school events. #birthday #Progeria #happybirthday #birthdaygirl | Progeria Research Foundation
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Help the Progeria Research Foundation wish a Happy 12th Birthday to Livia from Brazil 🇧🇷! 🎁Feliz aniversário Livia loves playing with her pets during her free time. She has many animals including dogs 🐕, cats 🐈, rabbits 🐇, turtles 🐢, fish 🐠, chickens 🐓, and peacocks 🦚. She also loves singing and dancing at school events. #birthday #Progeria #happybirthday #birthdaygirl | Progeria Research Foundation
49.5K views11 months ago
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The Progeria Research Foundation just got a $25,000 MATCH Challenge - Now you can DOUBLE your impact❣️ You can get us to our goal 🥅. EVERY DONATION made by Monday, July 15th will be matched up to $25,000!! Please donate TODAY! Help us push the boundaries of science toward the cure for Amina and all those with #Progeria. 💙 Donate here: https://bit.ly/ONEpossible2024 by July 15th and be ONE to make the cure POSSIBLE! 💙 #ONEpossible #fundraiser #fundraisingcampaign #research #scientificbreakthro
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The Progeria Research Foundation just got a $25,000 MATCH Challenge - Now you can DOUBLE your impact❣️ You can get us to our goal 🥅. EVERY DONATION made by Monday, July 15th will be matched up to $25,000!! Please donate TODAY! Help us push the boundaries of science toward the cure for Amina and all those with #Progeria. 💙 Donate here: https://bit.ly/ONEpossible2024 by July 15th and be ONE to make the cure POSSIBLE! 💙 #ONEpossible #fundraiser #fundraisingcampaign #research #scientificbreakthro
157 viewsJul 9, 2024
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Enjoy these Progeria Research Foundation Team runner clips from Falmouth Road Race yesterday! You are all amazing! You can still support our team: https://bit.ly/PRF_2025_FRR #NumbersForNonprofits #findthecure #Progeria | Progeria Research Foundation
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Enjoy these Progeria Research Foundation Team runner clips from Falmouth Road Race yesterday! You are all amazing! You can still support our team: https://bit.ly/PRF_2025_FRR #NumbersForNonprofits #findthecure #Progeria | Progeria Research Foundation
891 views9 months ago
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🎽Support Team The Progeria Research Foundation Boston Marathon runners 🏃‍♂️Bobby Nadeau, 🏃‍♂️Brian Fligor, and 🏃‍♂️Paul Michienzie by attending their FUNdraiser at Wormtown Brewery! Enjoy live music 🎸, appetizers 🥨, raffles 🎟️ and much more❗ 👟Event Details: Thursday, March 21st at 6:30PM Wormtown Brewery at Patriot Place 250 Patriot Place, Foxboro, MA Purchase event tickets 🎟️ and raffle tickets 🎟️ here: https://bit.ly/WormtownFundraiser 🎽https://bit.ly/PaulMBostonMarathon2024 🎽https
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🎽Support Team The Progeria Research Foundation Boston Marathon runners 🏃‍♂️Bobby Nadeau, 🏃‍♂️Brian Fligor, and 🏃‍♂️Paul Michienzie by attending their FUNdraiser at Wormtown Brewery! Enjoy live music 🎸, appetizers 🥨, raffles 🎟️ and much more❗ 👟Event Details: Thursday, March 21st at 6:30PM Wormtown Brewery at Patriot Place 250 Patriot Place, Foxboro, MA Purchase event tickets 🎟️ and raffle tickets 🎟️ here: https://bit.ly/WormtownFundraiser 🎽https://bit.ly/PaulMBostonMarathon2024 🎽https
937 viewsJan 31, 2024
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🙏 From The Progeria Research Foundation, the children, young adults and their families, a giant thank you to ALL who donated – big or small - for being part of #GivingTuesday with us! Please continue to share our posts and raise awareness of this ultra-rare disease. Together, we WILL find the cure ❣️ It’s never too late to GIVE https://bit.ly/PRFSMDonate #ClinicalTrials #Progeria #findthecure #lonafarnib | Progeria Research Foundation
797 viewsDec 4, 2024
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Because of your support…👏👏👏 The Progeria Research Foundation is exploring 3 therapeutic pathways to treat & cure #Progeria, attacking this disease at the protein, RNA, and DNA levels. 💙 Today, learn how we’re working at the protein level, with: SMALL MOLECULE DRUGS 🟣 HOW does it work? This treatment reduces the level of the toxic progerin protein that causes Progeria. 🟣 WHAT is PRF’s role? PRF is collaborating with the biotech company PRGS&T to begin a new clinical trial exploring whether
143 viewsJun 10, 2024
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Happy Mother’s Day from The Progeria Research Foundation❣️ 💙“If you’re a mom, you’re a superhero. Period.” —Rosie Pope 💜“Sometimes the strength of motherhood is greater than natural laws.” —Barbara Kingsolver 💚“Mother love is the fuel that enables a normal human being to do the impossible.” —Marion C. Garretty 💛 https://bit.ly/PRFDonation #Progeria #mothersday | Progeria Research Foundation
1.2K viewsMay 12, 2024
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🏒In less than a week, The Progeria Research Foundation will be participating in the Boston Bruins Foundation 50/50 raffle 🎟️ in person at the TD Garden on Tuesday, December 3rd, 2024 vs. Detroit Red Wings at 7:00 PM! We hope you’ll get us closer to our GOALS 🥅 by supporting the Boston Bruins Foundation and PRF. PRF will receive 70% of the beneficiary half of each ticket 🎟️ sold and you can purchase tickets online before the in-person game at: https://bit.ly/PRFBruinsRaffle #BruinsFoundation
131 viewsNov 27, 2024
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It is with great pride that the Progeria Research Foundation (PRF) welcomes Boston Marathon runner Greg Waetzig to the 2026 Team PRF Boston Marathon Team! 🏃‍♂️💙💛 Welcome aboard, Greg! We are thrilled to have you join us and look forward to supporting you over the next six months as you log the miles, train hard, and raise critical funds to help children and young adults with #Progeria. 💙 To support Greg’s Boston Marathon run for The Progeria Research Foundation, please consider making a dona
158 views6 months ago
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🎂 Happy 13th Birthday to Alexander from Canada 🇨🇦! The Progeria Research Foundation hopes you have an awesome day! Alex is a very happy, loving, kind, amazing, funny boy and loves being with family and friends. He loves sports of all kinds: hockey, jujitsu, taekwondo, basketball, playing games on his computer. Alex is in junior high, grade 7, this year. #happybirthday #Progeria | Progeria Research Foundation
9.1K viewsFeb 25, 2025
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🏒Our friends at the Boston Bruins Foundation have once again offered us the fantastic opportunity to participate in their 50/50 raffle 🎟️ in person at the Boston Garden on Tuesday, December 3rd, 2024 vs. Detroit Red Wings at 7:00 PM. 💙 We hope you’ll join us in supporting the Bruins and Progeria Research Foundation! 🙏 We need to bring 35-40 volunteers to the stadium selling 50/50 raffle tickets, and PRF will receive 70% of the beneficiary half of each ticket sold. 💙 Interested volunteers th
292 viewsNov 7, 2024
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We've got a $10K MATCH for the next WEEK - Help The Progeria Research Foundation reach its $125,000 Goal! 💙 DOUBLE MY GIFT: https://bit.ly/OP2025Main Like Aaditya and Zein (pictured), our friends at North Shore Bank are showing their muscles by generously agreeing to DOUBLE all donations received through July 1st, up to $10,000! Your gift will go twice as far to support life-saving drugs and gene therapy development that could lead to the cure! Don't miss this special double match. Be ONE to ma
78 views11 months ago
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🐕 Happy National Dog Day from all of us at The Progeria Research Foundation! Meet some of the special pups 🐾 who brighten our days and bring smiles to the PRF office ☀️. If you ever stop by, chances are you’ll be welcomed by one of these wagging bundles of love. National Dog Day is all about celebrating every dog—purebred or mixed—because each one is extraordinary. 💛 Learn more here: https://www.nationaldogday.com/ 🐾 We’d love to see your furry friends too—share a photo of your four-legged c
138 views9 months ago
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In this short video, Dr. Leslie Gordon, Co-Founder & Medical Director of the Progeria Research Foundation, explains the vital importance of Rare Pediatric Disease PRVs for progeria research and other disorders. If you have not taken action on this issue, do so here: https://rarediseases.org/driving-policy/take-action/#/224 | National Organization for Rare Disorders, Inc. (NORD)
527 viewsAug 1, 2024
FacebookNational Organization for Rare Disorders, Inc. (…
In Memory | The Progeria Research Foundation
Apr 12, 2017
progeriaresearch.org
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The Progeria Research Foundation’s phenomenal progress toward a cure would not be possible without its supporters. 💙 Check out the MANY ways you can GET INVOLVED❣️https://www.progeriaresearch.org/get-involved/ 💙 #Progeria #getinvolved #Give #Participate #Fundraise #Volunteer | Progeria Research Foundation
502 viewsOct 9, 2024
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Join Us for the 24th Annual International Race for Research! 🙏 Thank you to this year’s Foot Print Sponsor, The Pritchard Family, for their unwavering support of The Progeria Research Foundation’s 24th Annual International Race for Research! We truly appreciate the Pritchards for being part of the PRF family since the very beginning. 💙 Are you ready to join us? Register for the race happening on Saturday, September 13th, by visiting: https://bit.ly/24thRFR. For more information, including regi
106 views8 months ago
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Leadership with heart 💙Audrey Gordon, Executive Director of the Progeria Research Foundation, shares how compassion and determination drive global progress for children with #Progeria. Help PRF Find the Cure! https://bit.ly/PRFSMDonate #Leadership #ProgeriaResearchFoundation #FindtheCure #Inspiration #PRF | Progeria Research Foundation
2K views7 months ago
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The Progeria Research Foundation is sharing a few special Highlights throughout December: ❤️ Highlight #3 💙 Kicked off a pre-trial study in RNA therapeutics – moving closer to a clinical trial in Genetic Therapy. 😍 Donate Today: https://bit.ly/PRFDonate 🥰 #Progeria #YearEndDonation | Progeria Research Foundation
122 viewsDec 18, 2023
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BE ONE TO MAKE A CURE FOR PROGERIA POSSIBLE! We've made phenomenal progress with one treatment. With your support we will get to the cure. Donate at ONEpossible.org today. PRF"s Youth Ambassador, Meghan Waldron, recently spoke at the Night of Wonder "Rock the Cure" gala in front of over 450 people! Meghan and Megan Nighbor are the faces of our 2018 ONEpossible Campaign. Meghan is an accomplished cellist and violinist, high school cross country and track team athlete and published poet. She is a
4.8K viewsJun 5, 2018
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Progeria gene therapy is entering a new and exciting stage. After six years of rigorous research, The Progeria Research Foundation (PRF) and its scientific partners have developed a gene-editing therapy designed to permanently correct the single-letter mutation that causes Progeria. There is still important work ahead, but this marks a substantive step on the Path to CURE PROGERIA. “I‛m really excited about the gene therapy they‛re working on – when it‛s ready, so am I!” ~22-year-old Kaylee from
2.9K views4 months ago
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💙 The Progeria Research Foundation is sharing a few special Highlights throughout December: 😍 Highlight #5 😘 Flew 13 children & young adults to Boston from 9 countries for their lonafarnib clinical trial visits. 🙏With your support, these smiles can continue to brighten up the world! ❄️ Donate Today: https://bit.ly/PRFDonate ❄️ 🥰 Here are just a few of their beautiful faces.😍 #Progeria #YearEndDonation #clinicaltrial | Progeria Research Foundation
259 viewsDec 27, 2023
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🎁 Happy 18th Birthday to Miles from Sweden 🇸🇪 from all of us at Progeria Research Foundation❣️ 🎉 Grattis på födelsedagen 🎉 #progeria #happybirthday | Progeria Research Foundation
724 viewsSep 23, 2024
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Help the Progeria Research Foundation score much-needed funds by participating in the Boston Bruins Foundation 50/50 Raffle! Online tickets are available now through the start of the 3rd period on 1/29/26: 🔗 https://bit.ly/BruinsRaffleJan2026 PRF will receive 70% of the beneficiary half of every ticket sold, making a powerful impact on our mission to find the cure. Please note: The raffle is only open to persons located in Massachusetts, New Hampshire, and Maine at the time of purchase who are
252 views4 months ago
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Thank YOU for celebrating Meghan’s March Madness with us! Because of all of you we raised over $19,000, which will go directly to our mission to find the cure! We hope you enjoyed getting to know Meghan. If you haven’t seen her video - check it out now! | Progeria Research Foundation
1.7K viewsApr 1, 2019
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💙 Please donate by midnight tonight to The Progeria Research Foundation and drive breakthroughs in 2026! https://bit.ly/PRFSMDonate Your support will: 🩵 ACCELERATE THE CURE: PRF’s transformative, gene-editing therapy work must continue at the fastest pace possible. 🩵 IMPROVE LIVES TODAY: The progerinin clinical drug trial must continue so we can determine if it’s an effective treatment. 🩵 FIND EVERY CHILD: 26 have been identified this year – each one counting on us. Let’s find even more in 2
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